Heet effect van watertraining bij volwassenen die lijden aan Inclusion Body Myositis: levenskwaliteit en spieruithouding

Febe Sluiter
Persbericht

The effect of hydrotraining on adults with Inclusion Body Myositis: Quality of Life and muscle endurance

Inclusion Body Myositis (IBM) is een zeldzame spierziekte die voornamelijk getroffen wordt in mensen, ouder dan 50 jaar. De oorzaak is ongekend, maar de bijkomende problemen zijn niet te onderschatten. Ze hebben een verhoogd risico om te vallen omdat de spieren atrofiëren. Deze thesis onderzocht of oefeningen in het water bij patiënten met deze zeldzame spierziekte beschouwd kunnen worden als een waardevolle, toepasbare behandeling. Ze krijgen mogelijkheden die niet haalbaar zijn op de begane grond: ze kunnen hun limieten opzoeken en zo hun conditie verbeteren, springen, lopen, ... Samengevat kunnen ze werken aan hun zelfvertrouwen en hun dagelijkse levenskwaliteit. 

Bibliografie

[1] H. Alexanderson, “Exercise in myositis”, Current Treatment Options in Rheumatol
ogy,4(4),289-298.,2018.
[2] T.M.Association,“Skincareformyositis”,https://www.myositis.org,2015.
[3] A. N. Jørgensen, P. Aagaard, U. Frandsen, E. Boyle, and L. P. Diederichsen, “Blood
flow restricted resistance training in patients with sporadic inclusion body myositis:
A randomized controlled trial”, Scandinavian Journal of Rheumatology, 47(5), 400
409,2018.
[4] A. Wallace, A. Pietrusz, E. Dewar, M. Dudziec, K. Jones, P. Hennis, A. Sterr, G. Baio,
P. M. Machado, M. Laurá, I. Skorupinska, M. Skorupinska, K. Butcher, M. Trenell,
M.M.Reilly,M.G.Hanna,andG.M.Ramdharry,“Communityexerciseisfeasiblefor
neuromusculardiseasesandcanimproveaerobiccapacity.”,Neurology,Apr.2019.
[5] H. Alexanderson, “Physical exercise as a treatment for adult and juvenile myositis,
280(1),75-96.”,JournalofInternalMedicine,2016.
[6] G. F. Wiesinger, M. Quittan, M. Aringer, A. Seeber, B. Volc-Platzer, J. Smolen, and W.
Graninger,“Improvementofphysicalfitnessandmusclestrengthinpolymyositis
/dermatomyositispatientsbyatrainingprogramme,37(2),196-200.”,BritishJournal
ofRheumatology,1998.
[7] H. Alexanderson, C. Stenström, G. Jenner, and I. Lundberg, “The safety of a resistive
homeexerciseprograminpatientswithrecentonsetactivepolymyositisordermato
myositis,29(5),295-301.”,ScandinavianJournalofRheumatology,2000.
[8] V. Tiffreau, F. Rannou, F. Kopciuch, E. Hachulla, L. Mouthon, P. Thoumie, J. Sibilia, E.
Drumez, and A. Thevenon, “Postrehabilitation functional improvements in patients
with inflammatory myopathies: The results of a randomized controlled trial, 98(2),
227-234.”,ArchivesofPhysicalMedicineandRehabilitation,2017

[9] I. E. Lundberg, A. Tjärnlund, M. Bottai, V. P. Werth, C. Pilkington, M. de Visser, L. Al
fredsson,A.A.Amato,R.J.Barohn,M.H.Liang,J.A.Singh,R.Aggarwal,S.Arnardot
tir, H. Chinoy, R. G. Cooper, K. Danko, M. M. Dimachkie, B. M. Feldman, I. G.-D. L.
Torre, P. Gordon, T. Hayashi, J. D. Katz, H. Kohsaka, P. A. Lachenbruch, B. A. Lang,
Y. Li, C. V. Oddis, M. Olesinska, A. M. Reed, L. Rutkowska-Sak, H. Sanner, A. Selva
O’Callaghan, Y. W. Song, J. Vencovsky, S. R. Ytterberg, F. W. Miller, and L. G. Rider,
“International myositis classification criteria project consortium, the euromyositis
register,69(12),2271-2282.”,ArtritisRheumatology,2017.
[10] R.C.Griggs,V.Askanas,S.DiMauro,A.Engel,G.Katpati,J.R.Mendell,andL.P.Row
land, “Inclusion body myositis and myopathies, 38(5), 705-713.”, Annals of Neurol
ogy,1995.
[11] C. Lindberg and A. Oldfors, “Prognosis and prognostic factors in sporadic inclusion
bodymyositis,125(5),353-358.”,ActaNeurologicaScandinavica,2012.
[12] M. R. Rose, M. P. McDermott, C. A. Thornton, C. Palenski, W. B. Martens, and R. C.
Griggs,“Aprospectivenaturalhistorystudyofinclusionbodymyositis:Implications
forclinicaltrials”,Neurology,2001.
[13] H. Alexanderson, “Exercise in inflammatory myopathies, including inclusion body
myositis,14(3),244-251.”,CurrentRheumatologyReports,2012.
[14] M.C.Dalakas,G.Rakocevic,J.Schmidt,M.Salajegheh,B.McElroy,M.O.Harris–Love,
J. A. Shrader, E. W. Levy, J. Dambrosia, R. L. Kampen, D. A. Bruno, and 1.-1. Allan
D. Kirk 132(Pt6), “Effect of alemtuzumab (campath 1-h) in patients with inclusion
bodymyositis”,Brain,2009.
[15] Deportaalsitevoorzeldzameziektenenweesgeneesmiddelen,https://www.orpha.net,
May2019.
[16] Myositis.org,“Exerciseandphysicaltherapy”,TheMyositisAssociation,2019.
[17] E.A.Habers,M.vanBrussel,A.C.Langbroek–Amersfoort,A.vanRoyen-Kerkhof,and
T. Takken, “Design of the muscles in motion study: A randomized controlled trial  to evaluate the efficacy and feasibility of an individually tailored home-based exercise training program for children and adolescents with juvenile dermatomyositis,
13,108.”,BMCmusculoskeletaldisorders,2012.
[18] Y. Allenbach, O. Benveniste, V. Decostre, A. Canal, B. Eymard, S. Herson, C. Bloch
Queyrat, and J. Y. Hogrel, “Quadriceps strength is a sensitive marker of disease pro
gression in sporadic inclusion body myositis, 22(11), 980-6.”, Neuromuscular Disor
ders,2012.
[19] D. S. de Oliveira, R. G. Misse, F. R. Lima, and S. K. Shinjo, “Physical exercise among
patients with systemic autoimmune myopathies, 58(1), 5.”, International Journal of
AdvancesinRheumatology,2018.
[20] L. Dimitrijevic´, M. Aleksandrovic´, D. Madic´, T. Okicˇic´, D. Radovanovic´, and D. Daly,
“The effect of aquatic intervention on the gross motor function and aquatic skills in
childrenwithcerebralpalsy,32,167-174.”,JournalofHumanKinetic,2012.
[21] fysioDelft,Hydrotherapie,https://www.fysiodelft.nl/hydrotherapie.php.
[22] G.enwetenschap,Hogebloeddruk(hypertensie),
https://www.gezondheidenwetenschap.be/richtlijnen/hoge-bloeddruk-hypert…,
2014.
[23] D.physiotherapeut,Uitgebreidetoelichtingvanhetmeetinstrument,
https://www.meetinstrumentenzorg.nl/Home/SearchPost?meetinstrument=47,S….
2014.
[24] H. Alexanderson, L. Broman, A. Tollback, A. Josefson, I. E. Lundberg, and C. H. Sten
stro, “Functional index2: Validity and reliability of a disease specific measure of im
pairment in patients with polymyositis and dermatomyositis, 55(1),114-122.”, Artri
tisandRheumatology,2006.
[25] P. A. Bishop, E. Jones, and A. K. Woods, “Recovery from training: A brief review: Brief
review,22(3),1015-1024.”,JournalofStrengthandConditioningResearch,2008.
[26] 3athlon, Formule van karvonen, https://www.3athlon.be/2005/09/29/formule-van
karvonen/,Sep.2005.

[27] SchuitemakerandvanSchaik,24regel,https://www.fysio.net/index.php/client
patientinfo/180-patientinformatie-alfabetisch?highlight=WzI0LCJ1dX
IiLCJyZWdlbCIsIjI0IHV1ciIsIjI0IHV1ciByZWdlbCIsInV1ciByZWdlbCJd,2019.
[28] M.Sullivan,J.Karlsson,E.John,andJ.Ware,“Theswedishsf-36healthsurveyevalua
tionofdataquality,scalingassumptions,reliabilityandconstructvalidityacrossgen
eralpopulationsinsweden,41(10),1349-1358.”,SocialScienceandMedicine,1995.
[29] N. K. Aaronson, M. Muller, P. D. Cohen, M. L. Essink-Bot, M. Fekkes, R. Sanderman,
M. A. Sprangers, A. te Velde, and E. Verrips, “Translation, validation, and norming
of the dutch language version of the sf-36 health survey in community and chronic
diseasepopulations,51(11),1055-1068.”,JournalofClinicalEpidemiology,1998.
[30] Rand-Health-care,36-itemshortformsurvey(sf-36)scoringinstructions,https//
www.rand.org/health-care/surveys_tools/mos/36itemshortform/scoringtml.

Universiteit of Hogeschool
Revalidatiewetenschappen en kinesitherapie- afstudeerrichting musculoskeletale kinesitherapie
Publicatiejaar
2019
Promotor(en)
Steven Truijen
Kernwoorden
Share this on: